Is your research answering the questions that patients really see as a priority?

Session: 

Oral session: Priority setting (1)

Date: 

Tuesday 22 October 2019 - 14:00 to 15:30

Location: 

All authors in correct order:

Smart P1
1 Cochrane Skin Group (as a patient representative), UK
Presenting author and contact person

Presenting author:

Peter Smart

Contact person:

Abstract text
Background: as the James Lind Alliance (JLA) observe, "research on the effects of treatments often overlooks the shared interests of patients, carers and clinicians. Questions that they all consider important are not addressed and many areas of potentially important research are neglected." This abstract will examine the system of Priority Setting Partnerships (PSPs) developed by the JLA in partnership with research institutions to ensure research programmes focus on the priorities set in partnership with patients and clinicians. The case study used will be the PSP for cellulitis, a collaboration between the JLA and the Centre for Evidence Based Dermatology (CEBD) at the University of Nottingham UK. The author is a member of the CEBD patient panel.

Objectives:
1) to review the UK system of PSPs established to ensure healthcare systematic research is focused on an agreed set of research objectives;
2) to assess with participants the extent to which the UK system might be adapted in other countries/cultures.

Methods:
1) a brief introduction to the process adopted by PSPs;
2) an explanation of how the process works in practice, using the Cellulitis PSP as a case study;
3) a brief review of how the outcomes of the PSP are informing research in practice;
4) a guided discussion on how a PSP type of system might work in the countries/cultures represented at the presentation.

Results: the presentation will include an overview of how the process works, using the outcomes from the cellulitis PSP as a practical example, including an assessment of the period over which the PSP was active and the resources involved.

Conclusions: the outcomes of the PSP have now guided a number of research projects, at CEBD and other institutions.

Patient or healthcare consumer involvement: the membership of the PSP steering group included four patient representatives, alongside six clinicians and four support staff from JLA/CEBD. At the final stage, the number of patients was increased, to ensure an even wider representation of views.

Attachments: